As you all know, our baby girl has severe epilepsy. If it wasn’t for this cruel, unforgiving disease, Sienna would be a fully able child, walking and talking and living her live in full. Epilepsy took all that away from her and held her in a cage of her own with a brain unconnected to essential areas meaning her life will never be as full as most.
The words ‘It will unfortunately be a seizure that will kill her’ said by the consultant will ring in our ears always, and leave us on edge every time her little body is flung about by a seizure.
We have seen what epilepsy can do, and we would love to help aid research and support to stop others going through it, and for those who don’t have such an amazing supportive family and friends like we do, get some support through young epilepsy charity, because, speaking from experience, epilepsy is possibly one of the worse rollercoaster rides in life, especially when it’s your kid riding it and you can’t help to get them off it.
And so, Dave and I are currently training for a 25k trek across the Peak District in order to raise some money and awareness to young epilepsy charity. It is going to be far from easy, across lots of rough terrain, hills, the same distance as a marathon starting at 7am with a likely finish around early Sunday morning.
Thank you in advance from us both